"Motherhood is about raising - and celebrating - the child you have, not the child you thought you would have. It's about understanding that s/he is exactly the person s/he is supposed to be. And that, if you're lucky, s/he just might be the teacher who turns you into the person you are supposed to be."
~ Joan Ryan, The Water Giver

 think good thoughts
I once asked a man in his late 80's what kept him going...
        he replied, "I Think Good Thoughts!"

If you knew you could make a difference in someone's life, would you?
Epilepsy affects 65 MILLION people worldwide.
In the U.S., it affects more than 300,000 children under the age of 15 ~
more than 90,000 of whom have seizures that cannot be adequately treated.
Here is one of those 90,000.

Dear Scooter, 
I see you.
Slumped suddenly where you sit or
Collapsed in the spot where a moment ago you stood
As you are attacked without warning.
I hear you.
Although you have no words,
I hear the pain and confusion in your cries.
I see the plea for help in your eyes.
I feel you.
I feel your body stiffen and tremble
As I pray for you
And wait with you
For this to stop.
I am here.
I hold you close
As this subsides
I sing a song to you
To make you feel safe again.
I see you. 
As you sleep in your bed at night. 
I watch for the rise and fall of your chest.
And say a silent prayer of thanks.
I love you.
I tell you everything's gonna be alright.
But the truth is that
I just don't know.
Together we stand.
Together we hope.
Together we fight.
That we may someday find a cure.

~author unknown

Think Good Thoughts

Grimes, IA 50111
Click here to read Scooter's journal and
receive journal updates via text or email!

Exciting News...

Poop Pills - Doctors create 'poop pills' that transfer feces from healthy people into guts of patients with infections. 
Cancer Drug effective for epilepsy treatment?
Scooter's friend Emily's (who also has IS) success with medical marijuana Indiana family moves to Colorado for daughter's medical marijuana treatment

Medical marijuana renews hopes for epileptic kids
Brain Found to Naturally Make Valium-Like Compound (Diazepam) - EpilepsyU
Epilepsy belt alerts caregivers of kid's seizure - EpilepsyU
A protein which acts like a plumber in the brain has been discovered by scientists who believe it could be a key to helping prevent strokes and other brain disorders including epilepsy. 

Click here for more information.

High-fat ketogenic diet reduces seizures in children. We have not yet tried this with Scooter but it is an option. 

Click here for more information. 

In the works...
*I recommend using the Parking Mobility App Use your phone to report handicap parking violations. Take 3 quick photos. A report is sent to the city and they in turn fine the motorist. AND, a portion of the ticket cost goes to a charity of your choice! WIN/WIN. Verify with your city that they participate in this application. 

*spoke to the Iowa Council for Early Access and look forward to continuing relationships

*Miss Amazing Pageant - Iowa's first ever was held February 2, 2013. The mission of the Miss Amazing Pageant is to provide an opportunity for girls and young women with disabilities to build confidence and self-esteem in a supportive environment. It was definitely an AMAZING event! Can't wait for the next one!

*Late summer 2012 - Asked the City of Grimes to consider redoing their tennis courts to allow access for all. Also to add a wheelchair swing at one of their seven parks. Update: This is all being looked into and they are looking at funding. :)

The tennis courts have a new entrance :)
Before :( After :)

 *Asked the City of Grimes to repaint the handicap parking spot at Lion's Park as well as add a sign. Update: They repainted the spots! :)

*Asked the City of West Des Moines to add wheelchair access to their soccer fields at Raccoon River Park. They have a side walk and then steps down a hill. No way for the elderly or those who use wheelchairs to descend or climb the hill safely. Update: the Mayor of West Des Moines quickly responded and is looking into this :)  
If you would like to donate to Think Good Thoughts, all money goes towards Scooter's intellectual and adaptive equipment needs. 

you can use PayPal

Welcome to Holland

I am often asked to describe the experience of raising a child with a disability to try to help people who have not shared that unique experience to imagine how it would fee. It is like this...

When you're going to have a baby, it is like planning a fabulous vacation trip to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum. The Michaelangelo David. The Gondolas of Venice. You may learn some handy phrases in Italian. It is all very exciting. 

After months of anticipation, the day finally arrives. You pack your bag and off you go. Several hours later the play lands. The stewardess comes in and says, "Welcome to Holland". "Holland?" you say. "What do you mean Holland? I signed up for Italy!!! I am supposed to be in Italy. All my life I have dreamed of going to Italy!"

But there has been a change in flight plans, they have landed in Holland and there you must stay. The important thing in that they have not taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It is just a different place. 

So you must go out and buy new guidebooks. And you must learn a new language. And you will meet a whole new group of people you would never have met before. It is just a different place. It is slower paced than Italy. It is less flashy than Italy. But after you have been there for awhile and you catch your breath, you look around and you begin to notice that Holland has windmills, Holland has tulips and Holland even has Rembrandts. But everyone you know is busy coming and going from Italy and they are all bragging about what a wonderful time they had there. And for the rest of your life you will say, "Yes, that is where I was supposed to go, that's where I had planned".

And the pain of that will never, ever go away, because the loss of that dream is a very significant loss, but if you spend your life mourning the fact that you didn't go to Italy, you may never be free to enjoy the very special, the very lovely things about Holland. 

Click here for part two
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